CI Society

Vision

Through compassion and service, to turn pain, despair and suffering of individuals with PID into comfort and healing.

Mission

Our mission is to improve the lives of people with Primary Immune Deficiency (PID) by promoting early diagnosis and effective treatments and through leadership in research, education and advocacy in partnership with healthcare professionals, volunteers, industry and government.

Our Values

These serve as our guidelines as we work in implementing our Vision:

Equal access to all Canadians
Dignity and respect for all individuals – We believe that all people should be treated with consideration. We appreciate diversity
Accountability – We are committed to using donors’ dollars wisely
Commitment to communities – We will nurture effective partnerships with volunteers, staff and other organizations
Optimism –We believe that any challenges can be overcome with hope and determination

History

The Society was founded in 1999 by John Perl, whose child was diagnosed with severe combined immunodeficiency (SCID), Jay Lefton, philanthropist and partner at Aird & Berlis, and Dr. Chaim Roifman, Division Chief of Immunology/Allergy at the Hospital for Sick Children in Toronto, Canada. The CI Society plays a vital role in being one of the first organizations in Canada to support research in the field of primary immunodeficiency as well as supporting education of patients and medical professionals.

Board of Directors:

John F. Perl, President
Chaim Roifman, MD FRCPC, Chair and Scientific Director
Joseph Vital, Board Member

Executive Director:

Richard Thompson, CFRE

Corporate Advisory Board:

Joel Abelson, Vice President, Canada and Intercontinental Business, Talecris Biotherapeutics
Peter L. Clark, Partner, Heenan Blaikie
Tracy A. Graf, President and CEO, Carfinco Income Fund
Tom Moran, President, Access Therapeutics LLC
Vicki Modell, Co-founder, Jeffrey Modell Foundation
Paul R. Perreault, Sr., Vice President & General Manager of North America Commercial Operations, CSL Behring