Jeffrey Modell Canadian Immunodeficiency Network

Mission

To serve as a highly respected healthcare resource across Canada that fosters early diagnosis of Primary Immune Deficiencies and ensures that PI patients have access to excellent care. This is accomplished through networking, knowledge dissemination and communication with healthcare professionals, patients and the general public.

The goal is to increase the diagnosed patient base.

Objectives

• Improve the health of Canadians who have PI.
• Promote PI awareness in healthcare professionals.
• Increase public awareness of PI.
• Be a meeting ground for the PI community.
• Provide leadership on PI health issues.
• Encourage broad community engagement.
• Align activities and programs, share best practices and synergize efforts.

Jeffrey Modell Canadian Immunodeficiency Network Sites

Edmonton – Dr. Stuart Carr Capital Health
Halifax – Dr. Tom Issekutz IWK Health Centre
Hamilton - Dr. Peter B. Dent Hamilton Health Sciences, McMaster Children's Hospital
Montreal – Dr. Reza Alizadehfar Montreal Children’s Hospital
Montreal – Dr. Elie Haddad CHU Sainte-Justine
Quebec – Dr. Aubert Lavoie Hôpital CHUQ-CHUL
Toronto – Dr. Adelle Atkinson Toronto Hospital for Sick Children
Vancouver – adult Dr. Amin Kanani St. Paul’s Hospital, University of B.C.
Vancouver – paediatric Dr. Stuart Turvey BC Children’s Hospital
Winnipeg - Dr. Chrystyna Kalicinsky Winnipeg's Health Sciences Centre

Jeffrey Modell Canadian Immunodeficiency Affiliated Members

Ottawa – Dr. Anne Phan Huy, Heamatology/Oncology, Children’s Hospital of Eastern Ontario
Calgary – Dr. Nicola Wright, Heamatology/Oncology, Alberta Children’s Hospital
Montreal – Dr. Donald C. Vinh, Division of Allergy & Clinical Immunology, Montreal General Hospital

Become an Affiliated Member

Are you a physician who is interested in learning about immune deficiency? Is your practice in a remote area or do you require some assistance in managing your patient population? If you answered yes to any of these questions, join the Jeffrey Modell Canadian Immunodeficiency Network by emailing us at network@cisociety.com.

Physician’s Grant Application

Physicians in the Jeffrey Modell Canadian Immunodeficiency Network are eligible to receive a grant of up to $5,000 Canadian. These funds are specifically restricted to the diagnosis and testing of patients with a suspected Primary Immunodeficiency and/or for physician education and public awareness. Physician symposia expenses such as conference facilities, audio-visual, printed material, coffee breaks, etc. can be funded under this program. Expenses for travel, hotel accommodations, honoraria, and personnel are discouraged.

Grant applications will be reviewed by the Canadian Network Steering Committee. You will be advised of the funding decision within 60 days from the date of submission. If approved, the appropriate funds will be forwarded and completion of a grant report is mandatory. Subsequent grants will only be considered after the summary report for the current activity has been received.

Please see Application Form for more details.
Click hear to download the grant report.

Click here to see previous grants.

Jeffrey Modell Canadian Immunodeficiency Network – PI Video Conferences

In 2008 The Jeffrey Modell Canadian Network formed the PI Video Conference series. Since then it has proven to be a highly valuable medium to discuss difficult cases as it allows expert physicians across the country to communicate and care for patients. Immunologists across Canada at JMCIN sites, rotate hosting video presentations, in which two complex cases are presented by trainees and discussed virtually. To add further educational value to these rounds, as of February 2009 the rounds became a self accredited event by the Royal College of Physicians and Surgeons of Ontario, for 1.5 hours per seminar. Attendance has been spectacular. Currently each province and territory in Canada has a Telemedicine network. Healthcare providers have recognized the potential for using this technology to erase the geographical barriers that separate them from their patients and colleagues. Participation continued to be accessible through these networks and webcasting. Site participation increased to 11 national sites from 7 sites in 2008, ensuring physicians in remote areas can listen in to our JMCIN Canadian experts, enhancing their own personal knowledge on PI patients.

Sites that have presented cases to date include:
March 3, 2008 – Dr. Reza Alizadehfar of Montreal Children’s Hospital
September 8, 2008 – Dr. Eyal Grunebaum, Toronto Hospital for Sick Children
November 3, 2008 – Dr. Stuart Turvey, B.C. Children’s Hospital
February 2, 2009 – Dr. Thomas Issekutz, IWK Health Network
May 4, 2009 – Dr. Nicole Wright, Alberta Children’s Hospital
September 14, 2009 – Dr. Anne Des Roches. Sainte Justine Hospital
December 7, 2009 – Dr. Chaim M Roifman, The Hospital for Sick Children
March 8, 2010 – Dr. Chrystina Kalicinsky, Winnipeg Health Science Centre
June 7, 2010 – Dr. Stuart Carr, Stollery Children's Hospital, Edmonton
September 13, 2010 – Dr. Reza Alizadehfar, Montreal Children's Hospital
November 22, 2010 – Dr. Chaim M Roifman, The Hospital for Sick Children, Toronto

SAVE THE DATE – Upcoming PIVC Seminars:

Monday February 28th, 2011 2pm EST
Drs. Stuart Turvey & Anne Junker BC Children's Hospital, Vancouver

Monday September 26th, 2011 2pm EST
Dr. Thomas Issekutz – IWK Health Centre, Halifax

Monday November 28th, 2011 2pm EST
Dr Elie Haddad, Sainte Justine, Montreal

With permission, case studies are archived on the CI Society physician’s only webpage.
Please email network@cisociety.com for upcoming dates, locations and times.